ADVOCACY FUNDING

Ann and Robert H. Lurie Children’s Hospital of Chicago

Ann and Robert H. Lurie Children’s Postural Orthostatic Tachycardia Syndrome (P.O.T.S.) multidisciplinary clinic. The P.O.T.S. clinic provides critical support to Lurie Children’s patients and families diagnosed with P.O.T.S. including social work, psychology, and nutrition support.

The Blair E. Batson Children’s Hospital

The Blair E. Batson Children’s Hospital in hopes of funding a multidisciplinary clinic for use of check-ups, annuals and on call for P.O.T.S. patients. Funding will go towards Ambulatory Blood Pressure Monitors (ABPM), Educational pamphlets, Presentations around the state of Mississippi, an RN Coordinator, on staff Psychologist to help make P.O.T.S. patients most comfortable and relieve of symptoms or flare-ups. 

 

Once we identified clinical trials and/or specific research projects will be budgeted and put into place by a research lab at the clinic which will innovate and expand new clinical trials and footprints for P.O.T.S. patients.